** If only one person can learn something from my experience and can eliminate their Lyme and co-infections, than all this writing will have been worth it.
following was taken from the various "symptoms lists" that I would write
out to help MD's figure out what had afflicted me. I had thought that it
would help them to make a diagnosis so I could get treatment and thus could
resume my healthy life. Unfortunately my efforts of writing them down were
repeatedly rejected. The MD's I dealt with, did not want to deal with more
than one or three symptoms at one visit because of their five minute per
client schedules. Maybe now these notes can help someone else identify
with this infection and can quickly get treatment before Lyme disease puts
you in disability or poverty.
September 2013- 6 months into recovery or for easier reading see below most all symptoms I experienced
Most all symptoms waxed and waned and some stayed a few years and then rarely showed up again.
Since 1997, constant pain of varying types and levels in the muscles, joints, and bones, as if they've been injured. It started suddenly upon getting out of bed one morning in late June of' 97. The entire both feet felt as if they had been beaten, bruised and had broken bones inside of them. Trying to walk on them was unbearable. Walking on the side of the foot seemed better. About fifteen minutes later I could gingerly walk on them and after awhile they were somewhat better and I could go to work. Only the underneath muscles continued to be sore when walking. (A good year later this was diagnosed as Plantar Fasciitis.)Now I doubt it was that.
-The top, sides, various areas, patches, inside the muscles, ligaments and bones and entire foot has pain;from burning, feeling of pulled muscles, bruised muscles, bruised boned, broken bones. Sometimes the soles of the feet feel like I am walking on broken glass or broken bones. This is where the first chronic body pain started from.
- Most of the time the feet burn (similar to how hands or knees that have been scraped from falling on the sidewalk and have sand embedded in them.) This particular pain and the burning are always in both feet at the same time.
- I have had one or two toes that suddenly hurt like gout pain (and interestingly have had the exact same digit finger(s) as the painful toe(s) be as extremely sensitive to touch with that same gout type pain lasting for days and other times only hours.)
- In the past eight years or so when laying on my back in bed and the blankets touch the toes or feet it creates a sharp burning pain within the foot and yet the outside of the toes kinda go numb.
- I get points on the feet, as well as any other place on the body, (similar to an accupressure point that is sore, but isn't an accupressure point.) that when I happen to touch it can be shocking with a extreme high level of pain.
- For a few years, most every day, I have had an intermittent sharp pain, as if a broken bone in the bone above the arch and sometimes in both feet at exact same place. It can prevent walking, until it resolves. It happens whether I am laying down or standing. (Now just occasionally.)Feb.2010 have not had this in the feet since about Dec.2008.Sept 2012 have re experienced this a few times when Herxing. Now Gone
- After the herniated disk, or whatever the excruciating spine pain was, the right foot was very lazy and it was as if I had to train my brain to make it do what I wanted it to do. I could be walking slowly and gently and land completely on the side of my foot. It does not do this any longer, but both feet can become suddenly lazy and cause trips as they do not respond as normal.Feb.2010 Still have lazy responding feet. (2014 Hindsight it was the infection in the spine/nerves)
- Starting in '97 the calf muscle would tighten
hard and remain in the constricted state sometimes for more than twelve
hours even after having slept all night. (It was difficult to fall asleep.
At the time I had a job that required many miles of walking every day)
To relax the muscles I tried different massage therapists and they
were unable to release them, nor could hot and cold compresses. It was
very weird. I had been in the habit of having full body massages at
the end of the month after my deadlines had been met and my massage therapist
had started wondering what had changed as now he found my muscles were
no longer releasing with the ease they had done in in previous years.)
After a few years or so the constricted locked leg muscles they stopped
doing that. I rarely ever experience that now.Sept
2012 this once recently for only a few hours. 2013 Gone
- That same year, actually when those muscles were constricted and also when they weren't, my legs started this weird feelings that they wanted to move. This annoying leg movement was mostly always there, night and day, for at least four years or more and now only reactivates once in a while for unknown reasons. Later, in my research I discovered that this was common and it even had a name of Restless Leg Syndrome.Feb.2010. No longer steady. Just odd times.Gone
- Fluid in the legs started accumulating. The legs felt hot as if feverish. (Eventually that fluid built up to into the lungs and at that point above the ankles I could move the fluid under the skin as if it were a sponge.. a good half inch deep, if not more. This edema became a severe problem by 2001.) That stopped after Homeopathic treatment May 2001.Feb.2010 Fluid retention started again but only during herx or summer heat.
- The long bone on the front of the legs is
excruciatingly sore if it is touched with any pressure. It is as if it
is bruised and has never healed.
(Actually most bones feel bruised).Gone
- Once, I could feel this weird sensation on the back of my right leg just above the ankle so I finally investigated and a vein, fairly large was having contractions causing a the vibration or wiggle.This was causing a tickling feeling and so the reason I investigated. I had never seen the likes and have never experienced that again. Since at that early time I was very concerned about the leg problems and I thought it would help my doctor if I gave her this added new symptom which resulted in her giving me an "are you crazy" look! Well, that just caused her to put a check mark in the "hypochondriac" column or the "nuts" column! (At that point in time I was still in the stage of thinking a medical doctor could figure out what was happening to my body) - I still sometimes have tickles behind the leg as if something is leaking and I have never figured out what causes that..Gone
- I had a spell (months) where both legs would
be asleep after waking from a nights sleep or just one from sitting for
Knees: 1997 the knee and hip joints would suddenly unlock when in motion and caused me to fall. Today the knees sometimes fail to lock or gets a very sharp sudden pain in them. It happens just in spells of days or weeks and then goes dormant again.Feb.2010 rarely if ever, Gone
- From 1997 to 2004 I had numerous falls on
my knees and they started swelling and feverish in 2001.(That
was the lyme arthritis that developed three to four years after the rash.)
Once I had a deep cut from one of the falls that remained unhealed for
over six months when I fell again and it broke the scab off, bled well
and finally healed itself.
- For a long time if my legs (maybe if I moved
during my sleep it was as if the bone in the knee joint had broken
and I would awaken by my own scream. It felt like someone had cut the inside
knee joint bones with an ax. I then had to hold the knee or try to
change position or cushion them with pillows so they would not move. It
cut deep in the inside of the in side knee joint. It would happen to only
one or sometimes both at the same time. If I moved them it would just cut
deep like a broken bone. It still happens, but only once in a while as
to compare to many times it would happen during the sleep, as well as daytime
also. Recently, as I check these notes, it has been creating this pain
on the left side of the knee.
- The knuckles get sudden nodules (that feel
like infected slivers.) They come suddenly. Sometimes for days to
months. The knuckles are usually very painful to bend when the tophis
are visible. Eventually my research said these were Tophi's Uric
acid crystals that seep from the joint. Yet, when I had showed these to
a Rhumatologist (that I had gone to see over one hundred twenty miles
away and had someone drive me there) he did not know what they were and
another medical doctor in this city did not know either. The homeopathic
doctor said it was uric acid crystals that seep from the joint. He also
told me that the pain in the shoulders and upper back was also caused by
uric acid crystals and the reason for pain when the muscles moved. I got
homeopathic remedies and now when it flares on the knuckles I try to eat
foods that will not aggravate and use herbs for uric cleanse. I found pictures
of tophi's on the Internet and it is clearly explained as gout.Sept.
2013. This is not related to the zoonotic infections. Now I know
it is hereditary .( spells of too much uric acid.) This pain can be well
hidden amongst other zoonotic symptoms. It must be treated as it will injure
the kidneys, in long run. When treated with herbs it fades away in three
or four days and that layer of pain goes away. Not zoonotic related.
- Just like the legs, or in any part of the body, a ligament, muscle, tendon, or bone can suddenly be in severe pain, for absolutely no reason at all. Gone.
- The upper arm
is usually always painful within, maybe the bone? Both arms have lumps,
cysts and knots in the muscles or under the skin. Massage and trigger point
therapy does not loosen them up and no one can tell me what the cysts are
under the arms (Lymph nodes)and
on the top of shoulders(This is from falling
and a thing pops out of the shoulder joint).
are very painful during "flare's" or when that area is probably inflamed.Seems
to have lessened. maybe the arms need more massage.
- 2008 Sept 15th to mid January 2009- A nerve
going down left arm to the little, ring and middle finger was constantly
radiating like the sensation one gets from hitting the funny bone. It started
when I had a kinesiology shoulder adjustment. Today the deadness in the
arm is restored and the constant nerve pain is no longer present. What
seemed to trigger it is when I put my face close to the mirror to see to
apply mascara and also when I do the energy balancing exercises of rolling
my eyes.) I thought this had been an injury unrelated to the Lyme, but
now I wonder if it wasn't because of the way it has acted and its duration.
I never know. I wanted to blame it on an injury, but maybe it simply triggered
what would have happened any ways. (Now I see this excrusiating wing
pain was probably a "Lyme attack" just like the hip /pelvis attack was.
It is extremely painful and triggers muscle spasms in and around and takes
a long time to dissipate.Still haunts me.Sept.
2013 This was spirochetes and their damage. Gone
-A lot of weird things happen when the messages from the lower spine gets screwed up when it is sore, or after I've sat on a deep sofa, or bent forward in a certain way, from bending, kneeling, bumping my legs, hip, and sometimes for absolutely no reason at all .: The messages to the muscles to my legs and lower area do not respond correctly so the legs get draggy and cause me to misjudge my steps, so I get injuries from tripping, falling, etc.. - It cuts off the strength to most lower muscles. - The bladder becomes more erratic .-Spasms occur front and back -The lower belly muscles will suddenly go tense making that part of the belly very flat. - Pain radiates from the back area. - Restless legs re-activate - Charlie horses act up. -Numbness in the legs occurs - And it causes weird sensation inside the lower belly as if something is seriously out of order. - It is erratic and inconsistent in its disruptions. Gone
-In the earlier years the muscles in the entire
back from top to bottom would suddenly, for no apparent reason, tighten
up and grow unbearable. These "full body" spasms were at the
high level of pain like a Charlie horse. If these spasms occurred
when I was driving it was horrible because the only way to relive it was
to lay on my back on the bed and kind of bend my knees up and wait for
it to dissipate. Now it only occurs just once in a while, mostly when
I am over tired, I think.2009. My lower back now shows on the x-ray
that it has curved. Gone
- Am very irritated when sweatshirt touches
my neck, more at certain times than at others. (It may have disappeareaed
after Babesia eradication.) Gone
-Long lasting red face or sudden blushing
that seemed to start from the right side or bladder (Had a bladder that
had to empty very often)and would turn the skin red in the chest, neck,
face, and scalp. Sometimes it feels like when a person has an injection
and it radiates as it flows through the body like blushing does, but this
is quick and intense.It is less often now. I used to think it was an infection
in the bladder but the test showed nothing. (It is not like what a hot
menopausal flash was like). Those sudden ones seem to now be dormant, but
the red face persists. I think it is Gone
P.S. ....and for those who have never experienced this Lyme infection and you think I am making it all up, please get your ignorance off of this web site. Your limited mind hurts me and the millions who suffer from any "invisible" diseases.
- When very tired.. walking and the
both eyes were acting up I could see something like a three petals in center
line of vision and somehow it would change from dark to brighter.
-Tonsils are always
cesspools. (Recent years I have discovered that if I press on them every
morning that it is helpful to drain them and prevents that excruciating
ear pain.) Gone
-The entire jaw bone can suddenly hurt and
if I chew on something when it is in that state it is as if there are slivers
underneath the tooth, so it is best not to eat at those times.Gone
-The right ear gets sudden very deep sharp pain and nothing relieves it. Then it can go away as quickly as it comes. It started about 1998 or so (One MD gave me a prescription for inner ear infection but I don't believe that is what causes it.) It can be excruciating when it remains for days at a time. (Ear candleling did not relieve it) Gone
- The bowels can stop moving for more than a week at a time and no amount of laxatives seem to help and then they simply resume as if nothing had happened. Gone
- Once after one of the falls it felt like some bowel or something twisted inside of me in the lower belly. When I sat I had to sit with my legs apart. I told my doctor about that, but she had no explanations. Months later I felt like what it feels like when a baby turns and then I was more comfortable sitting. More months later when I was sitting a election polls all of a sudden I get another large roll over movement in the belly area that same sensation and then it felt like things were balanced again. Sept.2012 Had a it of a twist or what felt like it in the intestines and after some days it resolved. Gone
- More recently, just below the rib it is
as if the bowel bloats in this area. It is hard and protrudes. It is hard
and pushes on the stomach and activates the esophagus reflux and also seems
to be affecting the lungs.
- Of course I had many injuries that mostly started in 1999.. the displaced sacrum that remained for five months, from falls, scraped hands, knees, cuts on the legs, dislocated shoulder, concussion from falling on the side of my head, herniated disk, tight muscles and so all these things disrupted my sleep. When all the injuries were healed I noticed that I was not going into a deep sleep and also it never seemed I had enough sleep and that went on for a few years until 2008 . Gone
->In recent years I am able to sleep in different positions, without waking up from the pain if I did not sleep on my right side directly on the hip and with legs in fetal position and pillow just so. Also now I do not hesitate to go to sleep at anytime of the day if I require more sleep. Since I cannot linger in bed after becoming awake, because the pain and burning is very active in that position, then it is best for me to get up and then go sleep again when I am dead tired. I am a light sleeper at this stage. I had a stretch for a year or more where I would instantly fall asleep, mostly after eating. During the night the bladder and whole body burning a few times a night seems to increase the body temperature to a high level and I need to cool off and relieve the bladder. (There is no sweat fever) If I do any amount of doing something like going to the store to shop, yard work, I most often need a sleep to replenish myself. That may now be old age! Feb 2009 I have been sleeping quite normal this past while and have had little insomnia. I still get nights where I have to empty the bladder two to four times, but still I have been sleeping unusually well. (May have been from taking MMS)Feb.2010 Not as much as in the past. Last night had to get up after tossing for a few hours because of the high heat in legs and Restless legs and couldn't get them to cool off, nor could fall asleep. Normal sleep has returned!Sept.2013
- When I lay down at night this pain in the limbs, along with every joint pain, muscle and ligament pain and neck and head and cyst pain, whatever the pain of the day, all seem to rise in pain level. If I am over tired it throbs all over and sometimes the tears just run from my eyes even though I am not crying. These pains can increase if I don't get proper sleep. Gone
-I have gotten up during the night and felt very much off balance as if I would fall and the feeling of being pulled to the floor or side and leaning to one side. It could have been something to do with the ear. Some nights or/and mornings getting out of bed is difficult as my body feels heavy and stiff and it is an effort to walk. This passes quickly as to compare to before. I cannot relate it to anything in particular. I now have normal sleeps. Just the odd time I will have the wide awake in middle of the night or be wakened by the boiling body. Gone
-In spells I can't stand much noise. It actually causes me to become very aggravated. I think the Vitamin B cushions the blow when I remember to take them. I don't like to have the radio, music or Tv except when I am having lunch or a break, yet even the fan on the computer can aggravate me. Noise can be very irritating and some trigger instant anger in me. not as bad as it was
quick sharp pains
The second in
2001, I experienced like a blood clot thing that came and went, my brain
was very scrambled for many weeks followed by anemia. I was disorientated,
foggy brained, felt like I was going to faint. I know something is not
right. It is as if I cannot go directly to my brain.Feb.2010 Anytime
I bump my head on cupboard etc. It is never good afterwards.
Sometimes I will say something and a few days later it comes back to me that what I said was false. It is as if it finally reached the processing and what had come out was simply pulled off the top shelf. When I remember what I said was not accurate I am embarrassed and feel the need to phone the people to correct the information I gave them and have done so. Then they start wondering if I am sane. Or, in conversation, what I was going to say simply disappears and is nowhere to be found.. the whole thought not simply just a sentence or a word or a name simply is instantly gone and cannot be accessed.Gone
If I am asked a question I can “see in my
mind” what I should answer but the name now is not there or information
and then comes to me much later. Sometimes reading out loud from a book
doesn't work either, just like suddenly my fingers don't know how to hit
the correct keys on the keyboard, or suddenly my writing is all messy and
screwed up as well as the spelling and then after awhile it comes back
to my original normal.
Prior to this health downfall, I always had
a book that I was reading. Then it suddenly became hard work or something
to read a book. I can still read, but sometimes after trying to read
some paragraphs nothing sinks in, so I leave it. Maybe it is because I
am unable to concentrate at those times. I have read few books in the past
twelve years. Prior to this I was always an avid reader with one book on
the go and a few waiting to be read on the side.
These cognitive problems I was not aware of instantly that I had a recurring problem or that it even was a problem as I imagine everyone has experienced each of my symptoms at one time or another in their lives and like everyone else this was simply a lapse and this too shall pass. It took me years (maybe after the fog lifted) before I could begin to understand and figure out how I was now processing information coming in and information going out or that I really could no longer rely on my skills. Very early on after the fall I would joke that I had made omelet with my brain with the concussions. I would go to say something and whoops it suddenly was not there, or use a word or to read something and nothing would hit the brain or someone was saying something and I would miss the whole or most conversation, someone would show me figures or say some numbers that I should have been able to put together to arrive at a conclusion but it just did not work in that compartment. These tricks that my brain has been playing on me and that people around me have been reacting to and thereby making assumptions about me because of my inadequacies has certainly preyed upon my mental well-being and made my life more difficult and confusing. I suppose other people were aware of my cognitive difficulties before I was and that is the reason they didn't have patience with me and I in turn found it to be very insulting. Just because for once in my life I was not being able to stand on my own two feet or be a take charge sort of a person, I quickly became useless to them. And when they started whispering behind me to each other and looking at me as if I were a specimen, or had gone nuts.. I remember each gesture, each remark, each comment that they made about my cognitive problems. I must have looked that stupid for them to have the guts to act that way. What people do not understand is that I know and remember everything they say and how they act in front of me and in my peripheral vision. I may look like I am totally spaced out, but it is simply an illusion. All it does when I am in that state is that I am very vulnerable to abuse, insults, being taken advantage of, etc. Eventually I learned to say "no" to gatherings where there were quite a few people and I took the rude remarks about not liking them anymore or I should be out more,or their wanting explanations of why I was not working.. when I had no explanation or no understanding of what had been happening to me or why it was happening.
I only got a week of depression about five years after the the healing of the big injuries had happened and I had done everything I could nutritionally and still I was not well enough and capable of holding a job. I also became very angry then at the MD's as I could get no results when I knew there was a solution to all my failed health.After one visit to an incompetent MD I simply walked over to the Mental Health place and asked to speak to someone. I was able to get a weekly appointment and it was good for me to puke out my frustration about my health and the not knowing of what had afflicted me. It felt good to have someone believe me and listen. The only thing I very much hated was that every single time I went he had me focus on my body from head to toe and give him a play by play on the pain in every area of my body(and I had much more pain at that time). With the pain I try to transcend from it and focussing on it made me "sick" as then the pain feels worse and I just don't feel it needs to be honored. As well, it would make me realize how much pain I had and how not healthy I was and I wanted to focus on my healthy parts and keep my eye on the prize which was to someday find an answer to all these symptoms and then to get treated from it and I would be healthy again and be would be able to go back to earn decent income and reclaim by active life. But, it was nice to talk to someone about the pain, the MD's, the fear of not being able to return to employment, about how people around me thought I was making up stories about my poor health, the loss of friendships, the insinuations I had suddenly turned hypochondriac, the not knowing...and having no explanations for myself or for others about my predicament.
Feb.2010 Mentally it has felt better for me
after finding out that I had Lyme disease.It was a "relief"! All
the symptoms fit. Other humans had experienced this, too. For awhile I
got a big surge of hope.
|I have not been on any drugs during this journey, except aspirin at the beginning and a little amount of Ibuprofen and other pain killers during severe injuries. The reason I did not go the drug route, other than I believe they weigh down the systems and the knowing the body knows how to heal itself, is because right from the start I felt the medications they wanted to give to me did not fit what was going on in my body and I wanted to find the answer to what had suddenly afflicted me. I did not want them to mask it as then they would never be able to find the root cause to pluck it out. I had also read, when Fibromyalgia was suggested as a diagnosis, that people were being treated with medications and they were getting minimal relief for a short while, then the patient went back in they were prescribed something else, over and over and over again..for the rest of their lives. A person with fibromyalgia had listed an entire page of different medications. I did not want to get on the "doctor visit medication" merry-go-round for the rest of my life...and reap little if any relief, only toxic innards.|
This taken from symptoms list and have listed only those that I have experienced.
> Body temperature feels unregulated.Sept.2013 Gone
> Ice cold body parts and patches anywhere on body that do not match environment.Sept.2013 Gone
> Unexplained sudden over-heating throughout body.Sept.2013 Gone
> Unexplained chills (difficulty getting warmed up)Sept.2013 Gone
> When sleeping: or intense body heat.Sept.2013 Gone
> Brain fog; Like a cloud reducing your clarity of mind.Sept.2013 Gone
> Brain block when trying to focus. Mimics Brain injurySept.2013 Gone
> Difficulty in thinking and processing information.Sept.2013 Gone
> Difficulty reading, especially for enjoyment. Sept.2013 Gone
> Difficulty in planning and organizing.Sept.2013 Gone
> Difficulty in problem solving/decision-makingSept.2013 Gone
> Difficulty to see or take in the whole picture.Sept.2013 Gone
> Difficulty with multi-tasking.Sept.2013 Gone
> Difficulty to think quickly and to respond quickly.Sept.2013 Gone
> Difficulty with judgment; Saying something without processing it correctly. Inability to think it through and its consequences.Sept.2013 Gone
> Difficulty estimating/figuring out time.Sept.2013 Gone
> Difficulty with calculations. (Inability to hold numbers in head,or to add/subtract on the spur of the moment.
> Difficulty getting started or completing a project.Sept.2013 Gone
> Slow processing of information.Sept.2013 Gone
> Difficulty in performing sequential tasks.Sept.2013 Gone
> Difficulty learning new tasks.Sept.2013 Gone
> Suddenly forgetting how to perform routine tasks and remembering how only much later.Sept.2013 Gone
> Problems with letter or number reversals (Mimics Dyslexia)Sept.2013 Gone
> Intermittent spelling and writing difficulty.
> Difficulty maintaining focus or concentrating. Sept.2013 Gone
> Racing thoughts. Mimics schizophreniaSept.2013 Gone
> Inattention: distractibility, easily side-tracked, trouble staying focused, trouble sitting still. Sept.2013 Gone
Talking a lot, in constant motion, hyperactive. Mimics ADD/ADHD- Attention-Deficit Hyperactivity Disorder
> Impulsivity: impatient, saying something without thinking first.Sept.2013 Gone
> Interrupting others in mid conversation or contributing to the conversation long after it is finished. Misspeaking. Sept.2013 Gone
> Difficulty in keeping up to a conversation or to understand what is being said. Disrupted participation in conversation. Sept.2013 Gone
> Difficulty in expressing ones self. Difficulty in word finding. Halting speech; Speech comes out as stammering, slurred, slow, hesitating. Name block. Speech errors, wrong word comes out.
> Slow processing, recalling, or remembering of information or what was read.Sept.2013 Gone
> Difficulty with basics, social, and day to day functioning.
> Intermittent distorted memory. Short/long term memory lapses. Forgetfulness, poor or loss of short term memory. Impaired memory functions (lost items, missed appointments, retold stories) DementiasSept.2013 Gone
> Tendency to get geographically disorientated; suddenly forgetting where a familiar destination is. Getting lost. Going to the wrong place. Unable to orientate oneself or recognize familiar places or figure out where one is or how to get back from home as everything looks unfamiliar.Sept.2013 Gone
> Difficulty chewing. Sept.2013 Gone
> Dental problems; chronic gingivitis, receding gums, thinning enamel.Sept.2013 Gone
> Sudden pain within each tooth.Sept.2013 Gone
> Painful gums, swollen gums.Sept.2013 Gone
> Painful/stiff jaw, mimics TMJ or jaw joint arthritis.Sept.2013 Gone
Digestive System Disturbances
> Malfunction of intestinal muscle contractions.> Nerves sending incorrect messages to digestive system.Sept.2013 Gone
> Paralysis or partial paralysis of the tongue, gag reflex, esophagus, stomach, and nearby organs, small and/or large intestines.Sept.2013 Gone
> Difficulty chewing, swallowing, or speaking.Sept.2013 Gone
> Gastroesophageal reflux or Rumination Disorder (which often leads to feeling starved and then over-eating)Sept.2013 Gone
> Not knowing when you are hungry or full.Sept.2013 Gone
> Unexplained weight gain or weight loss.Sept.2013 Getting better
> Bloated belly.Sept.2013 Getting better
> Unusual constipation: putty like/unresponsive to laxatives.Sept.2013 Gone
>(Bowels stop working for many days and suddenly restarts for no particular reason)Intestinal pseudo-obstruction.Sept.2013 Gone
> During night, rectal muscle/bowel cramping giving an urge to defecate. Proctalgia fugaxSept.2013 Gone
> Mild Liver function abnormalities; liver infection, inflammation, enlargement, elevated enzymes, (spirochaeta hepatitis)Sept.2013 healing
> Enlarged spleen.Sept.2013 Gone
> Gallbladder and bile duct disturbances. Sept.2013 Gone
> Pain in bottom of the right rib cage in the upper right quadrant of the abdomen Sept.2013 Gone
> Intestinal Microbial Flora imbalanceSept.2013 Gone
Ears and Hearing Disturbances
> Pain in ear(s) with no medical cause.Sept.2013 Gone
> Sound sensitivity (Sometimes noises causes extreme irritability)Sept.2013 getting better
Eyes and Vision Disturbances
> Papilledema blurriness, inability to see in a particular part of the visual field for a period of time.Sept.2013 Gone
> Sudden blurred "foggy" vision. Double vision.Sept.2013 Gone
> Sudden loss of partial vision (half vision) that later returns. Sept.2013 Gone
> Vision loss ??
> Increased floaters (like internal eye dust)Sept.2013 may have stopped.
> Floating black specs Sept.2013 may be gone
> "Spots" before eyes Sept.2013 Gone
> Flashing lights/showers of sparkles.Sept.2013 Gone
> Kaleidoscope movement in sparkle.Sept.2013 Gone
> Looking through waviness/wigglynessSept.2013 Gone
> Phantom images (Clearly seen: e.g. crystals, row of zigzag, small wiggly worms.)Sept.2013 Gone
> Sensitivity to lightSept.2013 Gone
> Pain behind or in eyes. Swelling around eyes. Pain due to inflammation Sept.2013 Gone
> Inflamed, itchy eyes, watery eyes.Sept.2013 Gone
> Conjunctivitis, pink eyeball, or prominent red veins.Sept.2013 Gone
> Eye redness, bloodshot eyes, and irritation.Sept.2013 Gone
> Pressure in eyesSept.2013 Gone
> Drooping of eyelid (ptosis)Sept.2013 Gone
> Feeling as if something is in the eye Sept.2013 Gone
Head, Face, Neck Disturbances
> Headache, Fever, nausea, decreased alertness, malaise, visual disturbances, stiff neck and back, decreased consciousness, tremor, seizures, lasting days to several months Encephalitis Sept.2013 Gone
>Inflamed brain and spinal cord Sept.2013 Gone
> Headache, fever, stiff neck, spine, sensitivity to light, nausea, sleepiness, confusion Lyme meningitis Sept.2013 Gone
> Headache lasting weeks to months persistent/severe/ head pressure /congestion /burning. Burning in the brain and sometimes the neck and spinal cord or parts of the head, forehead or most of the head. (Chronic meningitis) Sept.2013 Gone
> Extremely painful and disabling headache not relieved by any medication, lasting a long time. Sept.2013 Gone
> Pressure within the head as if the brain is being squeezed from not enough room. Sept.2013 Gone
> Swollen forehead (around eyes) or edema (fluid) in forehead. Sept.2013 Gone
> Sharp pains in the head that last for a few seconds but are persistent; electric shock, as if someone hit or thumped the side of the head hard. Sept.2013 Gone
> Tight scalp muscles. Itchy under the scalp, feeling better when rubbed/scratched or heat is applied. Sept.2013 Gone
> Sudden itchy, crawly feeling on scalp and also sudden pimples forming on the scalp Sept.2013 Gone
> Sore and tender areas on skull Sept.2013 Gone
> Sensation of gurgling or leaking inside the head Sept.2013 Gone
> Stiff or painful neck inability to turn head. Sept.2013 Gone
> Lightheadedness, wooziness, feeling off balance Sept.2013 Gone
> Difficulty with spatial awareness of where front and back doors are in own house, misjudging furniture and doorways,and when grabbing objects. Sept.2013 Gone
> Dizziness & equilibrium disorders. Vertigo a sensation of motion sickness, feeling off balance, that the floor is moving etc.. Sept.2013 Gone
> Numbness usually only on one side of the face to forehead Mimics Bell's Palsy Sept.2013 Gone
> Facial neuralgias: Twitching of facial muscles (tics), sensation of sharp facial pain, crawly feeling, or itching, tingling of nose and other facial parts. Sept.2013 Gone
> Sensation of a spider web or loose hair fallen on face. Sept.2013 Gone
> Facial flushing (red face) Sept.2013 Gone
> Drippy nose (unexplained) Sept.2013 Gone
> Pulsing sensations in parts of the body, vibrating sensations, head rocking to rhythm of pulse. Sept.2013 still there sometimes
> Numb/sore tongue/mouth. Sept.2013 Gone
>Throat-sore throat, swollen glands, cough, hoarseness, difficulty swallowing. Sept.2013 Gone
> Bacterial infective endocarditisinfection of the heart valves or lining of the heart. Sept.2013 Gone
> Myocarditisis infection of the heart muscle. Sept.2013 Gone
> Dilated cardiomyopathy/Congestive Heart failure Sept.2013 Gone
> Vasculitis (inflamed blood vessels) Sept.2013 Gone
> Heart murmurs.. Whooshing or swishing noise in heart beat Sept.2013 still there most of the time
> Heart palpitations or extra beats Sept.2013 remains most of the time frome adrenal malfunction
> Elevated blood pressure Sept.2013 Gone
> Heart rate slow, faint, rapid, or irregular, skipped beats. Sept.2013 most Gone
> Fainting. Sept.2013 Gone
> Feeling short of breath and find it harder to exercise. Sept.2013 Gone
Immune and Endocrine Disturbances
> Adrenal Disorders.Sept.2013 getting better
> Spleen: Tenderness, enlargement Sept.2013 Gone
> Persistent swollen lymph glands/nodesSept.2013 Gone
> Over production of nonadrenaline. A sudden startle releases a shot of stinging adrenalin pain in the body.Sept.2013 Gone
> Decreased energy. Tire quickly. Sept.2013 still there
> Declining stress capacity.Sept.2013 still there
> Inflammation and what feels like inflammation pain anywhere in the body causes intense pain, including any cysts within the inflamed area.Sept.2013 Gone
> Edema (excessive accumulation of water in organ) Increase of interstitial fluid. E.g, lungs, ankles etc.Sept.2013 still there
> Sugar craving. (Candida)Sept.2013 Gone
> Continual infections (e.g.sinus, kidney, yeast, bladder, etc.)Sept.2013 Gone
> A sudden bout of arthritis with swelling, redness, and pain in one or a few large joints, typically the knees, that persists, or no longer persists, that may have left the joints deformed, Sept.2013 Gone
> Joint pain and swelling around joint. Sept.2013 Gone
> Sudden "axed-like/broken bone" type pain in a bone, especially near a joint when asleep or in awake time also.Sept.2013 Gone
> Migratory pains in and around the joints and muscles, intermittent or chronic. Pain rises at high level whenever there is a flare in the bodySept.2013 Gone
> Creaking, popping, or cracking jointsSept.2013 Gone
> Stiffness of joints from toes to neck and back, sometimes for a constant period and other times sudden stiffness that goes after movement.Sept.2013 Gone
> Unexplained backaches. Deep and steady pain in spine that feels as if it radiates from pressure on the nerves surrounding it or as if the pain comes from deep inside of the spine. (From neck to tail bone.) Sept.2013 Gone
> Intense pain, mostly in the lumbar and cervical regions radiating to the extremities.Sept.2013 Gone
> Acute disk problem with deep and steady pain that radiates from pressure on the nerves surrounding itSept.2013 Gone
> Bone sensitivity and bone pain of different levels and intensity. Sept.2013 Gone
> Sudden agonizing bone pain of an entire length of one bone, the entire rib cage, or all bones connected to any single bone, becomes too sore to touch, similar to a bruised bone or a broken bone.Sept.2013 Gone
> Tenderness in lower shin medial tibia shaft bone.Sept.2013 Gone
> Foot, ankle, and heel pain, sore soles (esp. in morning) Sept.2013 Gone
> Deep aches and burning in palms/soles of feet.Sept.2013 Gone only some bunrning left
> Burning or stabbing pains in odd and shifting places Sept.2013 Gone
> Feeling of someone tapping on your shoulder or thumping you on the side of the head.Sept.2013 Gone
> Involuntarily trembling or body rocking or sensation when laying down as if in a boat on water.Sept.2013 Gone
> Muscle cramps/spasms (all over body) Sept.2013 still some ligament and tendon damage healing on left hip, buttock and thigh only
> Throughout body; Muscle tenderness and pains of varying intensity as if over-stretched, bruised, cut, scraped, injured, burned, sharp, dull, or aching. Mimics Fibromyalgia, including tender points that come and go.Sept.2013 Gone
> Knots or tight spot in muscles.Mimics or/and triggers MyoFascial Pain Still Some in arms
> Tendon and ligament pain. as above
> Tingling, numbness, weakness, or pain felt in the hand, forearm, or wrist that awakens from sleep. Arm(s) inflamed and swollen, for no reason.Sept.2013 Gone
> Sudden jolting sickening pain down the arm similar to the frozen shoulder pain.Sept.2013 Gone
> Entire body weakness body feels very heavy.Sept.2013 Gone
> Diminished reflexes, nerve conductivity defects causing weakness or partial paralysis of limbs, and coordination.Sept.2013 Gone
> Tingling sensations of the extremities Still some remaining (peripheral neuropathy damage healing
>Spastic paraparesis: Leg weakness, Difficulty walking, Arm weakness, Shortening of legs due to muscle spasticity, Clumsiness of hands, Difficulty in fine movements of hands and legs, Spasticity, Weakness, Muscle cramps, Muscle twitches, Exaggerated reflexes, Stiff movements, Jerky movements, Exercise intolerance, Reduced muscle strength Sept.2013 Gone
> Diminished exercise tolerance Sept.2013 remains
> Shocks, sharp jabbing, electric-like pain and shooting pains anywhere in the body. Sept.2013 Gone
> Feeling you are losing your mind/going crazy because the people around you disbelieve the reality of your pain, disabilities, and deteriorating health, most especially when you do not know what has afflicted you.Sept.2013 Gone (and they still disbelieve!)
> Anxiety Sept.2013 Gone
> Suicidal thoughts for relief from physical/emotional pain. And/or suddenly suicidal.Sept.2013 Gone
> Over-emotional reactions to fit the situation. To noise.. remains
> Easily frustrated, irritated, agitated, unusually short tempered Sept.2013 better, maybe once brain is healed it will settle.
> Sudden explosive irritability for no apparent cause.Sept.2013 better
> Much activity or noise or any sensory stimulation within environment triggers extreme agitation and or aggressiveness.Sept.2013 much better
> Sudden moments of suspiciousness/paranoia.Sept.2013 Gone
> Delusions.(must have had those also) Sept.2013 Gone
> Trying to do everything during periods of feeling okay and very little activity when laden with pain.Sept.2013 Gone
> Persistent anxiety, for no reason.Sept.2013 Gone
> Hypersensitivity to light, sound, smells, taste, touch and vibrations.Sept.2013 some remains
> Abnormal brain waves, seizures, momentary mini blackouts, periods of confused memory, episodes of staring, unexplained periods of unresponsiveness.Sept.2013 getting less.
> Tremors, unexplained shaking, jerking, twitching.Sept.2013 Gone
> Sensations in the body of pinpricks, stabbing, burning.Sept.2013 Gone
> A sensation of wearing an invisible "glove" or "sock"Sept.2013 peripheral neuropathy damage is healing
> Numbness in parts of the body and/or extremities.Sept.2013 peripheral neurapothy damage is healing
> Difficulty walking or moving the arms.Sept.2013 some gone. some remains
> Dizziness, poor balance, weakness, or partial paralysis of limbs, loss or diminished reflexes or coordination.Peripheral neuropathy Healing
> Feet/legs experience poor automatic response; Walking problems. Gait disturbance. Clumsiness. Tripping. Walking into things. Not knowing where your feet are. Poor muscle coordination, loss of reflexes, experiencing weaknessSept.2013 peripheral neuropathy damage is healing
> Burning, freezing, throbbing, shooting pain in limbs, hands and feet or toes and fingers or all, that is often worse at nightand is felt equally on both sides periodically or constant. Lyme Peripheral Neuropathy Sept.2013 Gone .
> Intense pain, mostly in the lumbar and cervical regions, and radiating to the extremitiesSept.2013 Gone
> Involuntary movement of arms, legs, and digits.Sept.2013 fingers left to heal
> Irresistible urge to move legs; sensations include creeping, itching, pulling, creepy-crawly, tugging, or gnawing in legs.Restless legs syndromeSept.2013 Gone
> Need to bend legs inward toward chest as close as possibleSept.2013 Gone
> Periods of jumpiness, easily startled Sept.2013 Gone, probably would return if I did not take B complex.
> Pressure-related neuropathic symptoms (e.g. an arm going to "sleep" while resting on a car door while driving),Sept.2013 Gone,
> Air hunger, laboured breathing, or gaspingSept.2013 Gone .
> Can’t get a full or satisfying breath.Sept.2013 Gone .
> Shortness of breath with exertion.Sept.2013 Gone .
> When talking suddenly running out of air.Sept.2013 Gone .
Severe Sleep Disturbances.
> Unusual, extreme, persistent fatigue.Sept.2013 getting better
> Instantly falling asleep, at anytime. Sept.2013 Gone .
> Pauses in breathing when asleep. ??
> Difficulty falling or staying asleep (penial Gland)or unable to sleep for no apparent reason.(Insomnia)Sept.2013 Gone .
> Unable to fall asleep or being awakened during sleep because of the high level of pain throughout the body. Sept.2013 Gone .
> Sleeping too much.Sept.2013 Gone .
> Unable to get into a normal deep sleep. Sept.2013 Gone .
> Being awakened in the middle of the night by sudden severe arthritic pains throughout entire body that is excruciating, dramatic, and feels like you are on deaths door and most of this horrid pain is gone by the next morning.Sept.2013 Gone .
> Pinna and ear lobes have varying shades of red. Sept.2013 Gone .
> Sensation of water dripping on skin or tingling sensations (like an insect crawling on skin, water dripping on skin, tingling, or spider web laying on skin. Sept.2013 Gone .
> Spots and areas on the body under skin that suddenly become extremely sensitive to touch.Sept.2013 Gone .
> Burning pain like sunburn or freshly scraped skin embedded with sand in the digits/ limbs.Sept.2013 Gone .
> Sudden itchiness of limbs or parts of body.Sept.2013 Gone .
> Skin flushes Sept.2013 Gone .
> Nodules under the skinSept.2013 Gone .
> All lumps and cysts become very painful during periods of active Lyme and within areas of inflammation. E.g. all endemitriosis cysts, implants, lesions, endometrioma's, endometrial polyps and sebaceous cysts, popliteal baker's cyst, paralabral cysts, ganglion's, lipomas, or any cyst within the body or lumpy masses under the skin or as well as old scars, warts, swollen lymph nodes, calcium deposits, Fibrocystic Breasts, Polycystic kidney cysts...Sept.2013 Gone .
> Fingernail changes such as vertical ridges, curved under, flat in center Sept.2013 becoming better .
> Numbness, tingling (Peripheral neuropathy nerves are healing)
> Neurogenic bladder (Sudden incorrect messages going to bladder): Underactive/overactive. Tiny stream. Straining to urinate. Hesitancy. Bladder not emptying completely. Inability to urinate. Frequent urgent need to urinate with difficulty to suppress. Loss of bladder awareness. Emptying instantly upon movement. Urine leakage. Sudden inability to contract muscles.These symptoms just as suddenly disappear and everything is back to normal, until they again suddenly reappear.Sept.2013 Gone
> Bladder pain relieved by urination.Sept.2013 Gone .
> Kidney problems Sept.2013 persists .
Emotional (later stages)
> Discouraged Sept.2013 Gone .
> Deteriorated self esteemSept.2013 Gone .
> Feeling ashamedSept.2013 Gone .
> Lots of anger and frustration.Sept.2013 Gone .
> Self-doubtingSept.2013 Gone .
> Anxiety over finances when inability to earn income.Sept.2013 Gone .
> Fear for deteriorating health or/and of dying.Sept.2013 Gone .
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